The Endometriosis Diet: Revisited
Since I'm starting up the blog again and renewing my efforts I thought it'd be useful to take another look at what is cut out and why - both for readers and also to strengthen my resolve in abstaining from chocolate! This is gonna be an ~8 part series through the month focusing on what is cut out and why, along with alternatives that I've found over the last 18 months where possible.
So first a quick run down of what's cut out again, along with a little about why:
Wheat/Gluten causes all kinds of nasty symptoms from bloating to IBS. Cutting it out is the difference between me fitting my clothes and living in my stretchy pjs - literally.
Red Meat is full of type 2 prostaglandins (more on these later!), which cause your body to have an inflammatory response. Endometriosis causes inflammation all on its own, so you want to avoid adding to it!
Dairy & Eggs are full of oestrogen, something you probably already have too much of if you have endo. Cutting it from your diet can help reduce the cyclical pain.
Sugar can wreak havoc with your hormones and is particularly known for causing irritability and even rage in some sufferers. It also feeds Candida - a yeast infection in the gut often found alongside endo/IBS.
Caffeine - I'll be honest with you, I can't entirely remember why you cut out caffeine. I've mostly succeeded, but maybe doing the research for this will help my resolve with staying away from coke!
Alcohol doesn't directly affect endometriosis, but it does affect your liver's function. Your liver is the #1 organ for eliminating excess oestrogen from your body, which it can't do all that effectively if it's working on last nights indulging!
Yeast - another food-source of Candida, so a good one to avoid.
Soy(a) is absolutely full of oestrogen. There are some types of soy sauce that are okay dependent on their brewing methods, but apart from that avoid soy at all costs.
Preservatives/Additives are made up of complex chemical compounds - some of which act as endocrine disruptors and xenoestrogens (again, more on these later!). Your hormones are all over the place enough without adding chemical substitutes for your body to deal with.
Personally I've had great success with gluten, red meat (I only broke down and had a beef chilli once and it so wasn't worth it), eggs and soy (the latter two only very occasionally). Medium success with dairy, caffeine and alcohol - I do sometimes slip up with my coke addiction and indulge in alcohol on special occassions. I also haven't been able to completely kick chocolate, so dairy sneaks in now and then. As for sugar, yeast and preservatives/additives, I haven't even started aside from switching to a few natural body products. So if you look at this list and think it seems impossible to even start, don't worry. It's a journey and it'll take time to get used to it. :)
Do you follow the Endo Diet, or a version of it? What do you cut out or slip up on? I'd love to hear your experiences!
BBQ Pulled Pork & Crazy Hormones
January was an interesting month - my hormones have been jumping all over the place and it's made me more than a little irritable. In fact I've even experienced full on rage, which was a new one for me. I think it had to do with having my first cycle in 6 months and it's not a feeling I'm looking to repeat...ever!
January also saw the return of another emotion I battle with occasionally: depression. After doing a vision board workshop I realised that I have rather few hobbies that I indulge in anymore thanks to the endo and for a while I did feel quite upset by it. But it's also a pretty exciting opportunity to explore some new hobbies and get back in touch with old ones (such as reading and blogging!).
On the flip side of all that January also brought me a need to declutter - a lot! I'm still in the middle of the process, but I've sold off some of our bookshelves, taken a few bags to charity and even sorted out my underwear drawer and put some to one side for a homeless shelter. I have a strong desire to purge all of the unnecessary stuff that's accumulated in the flat over the last 2.5 years and make room. Call it hormones or energy, but I suddenly feel a little claustrophobic with all the stuff we own. It's actually nice getting rid of some of it!
This has been a bit of a random post, but I guess that's what crazy hormones do - make everything a little random! I've really enjoyed putting together the first few posts about the Endo Diet and its alternative, so look out for those over the new few weeks. :)
How was January for you? Did you make some great progress on new goals or get distracted and forget them (like my healthy eating idea...)?
A Change In Direction
First things first, I got engaged in September! We were on our first holiday with my family in Spain and Tom proposed at midnight on the roof of our villa in a blanket fort. It was the cheesiest, most romantic thing ever and I loved it. :)
My business was also a rollercoaster - growing impressively fast early in the year then tailing off towards the end. December was hibernation mode for me and January has started with a million and one ideas on how to change my business to reflect me a little better.
My relationship with my family has only grown stronger - our experiences in 2013 really did cement some already pretty awesome friendships. I've also made new friends and gotten closer to existing ones, so 2014 was definitely a good year for relationships all round in my life. :)
But that's enough about life. Onto why I'm writing! And how fitting that it's one year since my last post - completely unintentional I assure you. I'm about to enter the next stage of my Endometriosis journey, having some scans to check up on everything and then (all being well) having the Mirena coil removed. This is partly to start the journey of having a family, although I think that one will still take some time, but more importantly I'm taking a much more natural, holistic approach to my endo. My experiences with the diet have been bitter-sweet; when I stick to it everything goes pretty well and I'm largely symptom free still, but if I slip up even slightly it can have some nasty consequences. The first step I'll be taking is to get more strict and more healthy - introducing fitness as well.
What's this got to do with the blog you might be asking? Well I want to document it all. I'll finally be sharing full details of the diet that I failed to finish last time, including recipes I find useful and alternatives to things you can't have on the diet. For example last night I made some caramel cookies that were completely endo friendly. Would you believe it?
I'll also be including any therapies that help, product alternatives to the chemical-filled ones you'll find in supermarkets. exercises that ease pain... all of it. Much like I used to track my eco adventures, I'll now be tracking my endo adventures (with some eco thrown in of course - I haven't changed that much!) in the hopes that it could help someone else going through the same. And the therapeutic effect writing gives me. ;)
I've already got billions of ideas for blogs popping into my head, but I won't be posting everything all at once. If my past unreliability has taught me anything, it's to pace the blogs and have some prepared in advance, so that's what I'm off to do!
If you have any questions about endo, the diet, recipe requests - anything at all - just leave them in the comments and I'll be sure to respond! :)
Reflection - My Story
Rather than get annoyed, I find myself reflecting on the last year and all it's brought me.
12 months ago I was experiencing just the beginning of what would soon become daily agony. I didn't know that I was soon to experience crippling pain that would have me sleeping on the living room floor wrapped in heat pads and blankets, on the strongest painkillers the doctors would give me, all in the hope of an hour or two of sleep before work. Pain that bloated my body and made every day a surprise of whether I'd make it to the end of the work day. Weekly osteopath appointments would just about keep me standing with the back pain and weekly doctor appointments would become more and more frustrating as my suffering fell on deaf ears.
9 months ago was the start of the pain. After 3 months of particularly bad 'womens problems' the pain was no longer just a symptom of an (extended) 'time of the month'. The pain became my month - all of it. And then it became two months. Then three and finally four. Four months of pain that was completely unexplained and the doctor settled upon IBS as the diagnosis from Day One. When each drug didn't work I was given another. Diet advice. Pain relief. No offer of an alternative diagnosis, further testing or anything that would've looked into the real cause.
7 months ago came the first blood test. The first admission that it might not just be IBS. By this point I hadn't slept in weeks and I was so bloated I looked 6 months pregnant. Work was becoming a struggle and I was starting to suffer depression from the constant pain. That blood test showed I had signs of infection in my blood, but no antibiotics were offered. Just an appointment in two weeks time for another blood test "to see if it's gone."
6.5 months ago came blood test number two. All my hopes pinned on this one - something had to show. Something that would explain everything. But life stepped in before I got those results.
Sunday 28th July I was in agony - even more so than usual and I couldn't even sit still. My blanket of heat pads didn't cut it and I rang the NHS advice line to find out what my options were at 9pm on a Sunday night. Within an hour I was at Frenchay Hospital Out of Hours GP seeing a lovely doctor who was probably the first to touch on the real problem. But he wasn't to be the one who would save me. Being late on a Sunday night he advised I visit my GP the next day. So back to my GP I went, for my blood tests to show more infection. And once more I was given an appointment in two weeks "to see if it's gone."
But Tuesday 30th July changed it all. Sat in my mum's kitchen I was in tears, not because of the pain but because I gave up. My family was outraged at the way I was being ignored, but I was just used to it. My fight left me that morning and I resigned myself to constant pain. I told my mum that someone else would have to fight for me, because I just couldn't anymore.
It's funny how the universe knows when you mean it. And I couldn't have meant it more. I was defeated. Within 30 minutes I was white and throwing up. Laying limply on the sofa an emergency doctors appointment was made for the afternoon. It's funny looking back that I didn't consider it serious enough for an ambulance even at that point. It was 'just IBS' after all.
That afternoon I saw a different GP. If angels exist she is one of them, because she saved me that day. I had a fever on top of the vomiting and I was sent straight home to pack for Frenchay. Something was very wrong.
At midnight after seeing a number of doctors and being sent to a different hospital I was finally admitted to the Gynae ward in Southmead Hospital with a suspected infection of my fallopian tubes. Tears streamed down my face for most of the night, especially at 2am when my mum had to admit defeat and head home to sleep. It was all just too much.
Wednesday 31st July I got my first glimpse of a real diagnosis. A scan showed two cysts - 8cm and 4cm - one on each ovary. My insides were a puzzle; it took them a lot of searching to find my ovaries in the first place as they were up by my bellybutton, touching in the middle. Blood tests also showed I had not one, but two infections. The one that had caused my fever but also a chronic infection that had been around for at least a month by that time. A very nice consultant gave me the news; it was either an abcess or endometriosis. I was put on antibiotics and watched constantly - if it was an abcess and it burst I'd need emergency surgery, but they wanted to wait until the infection was under control before surgery if possible.
I spent the next few days staying positive, meeting each new patient as they came and went and getting to know the nurses. I've never been more grateful for my family (especially my mum and Tom) as not a visiting hour went by that I wasn't surrounded by people, presents and food.
This time 6 months ago it was Thursday 1st August - the day before the first of two operations that changed my life in so many ways. In every way.
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| Me with presents after Op #1 |
3 months ago I came to the end of a new hell; the menopause was not kind to me. I was angry a lot of the time, depressed the rest and fighting to see an end to any of it. I'd also started on the Endometriosis Diet and combined with the Zoladex September and October were almost pain free for me. In one way I was so grateful for that relief, but in another the hormones took that gratitude from me as I was too emotional to enjoy it. And it still wasn't a solution. Zoladex was just a stop-gap on the way to the next surgery.
On Friday 22nd November I was admitted once more for another laparoscopy - this time to cut away the cysts and any endo they could get to. They were also checking my fertility and making sure all was working okay. At pre-op I'd been told I would be going home that night, but my consultant said it wouldn't be until the next day at least. So mum went off to work to keep occupied and I was taken off to surgery.
That afternoon I came around just long enough to hear the results before sleeping the rest of the day and night. The cysts were gone but they had bad news about my bowel, which was attached to my fallopian tubes. It was too risky to cut them apart, so they'd been left. And in my haze I almost missed it as the consultant said my fallopian tubes were blocked. I sat in shock and at that point I could only muster a few tears. I didn't believe it. Of all the things I thought they might say, my fertility was the one thing I'd been sure of. As the consultant explained further I just stared at her blankly. Once she was gone I could barely keep my eyes open. I knew I should be talking to mum and Tom, but the pull of sleep was too strong and so I sent them home. Sleep provided me with an escape from all the things I just couldn't cope with right then. The next day I was discharged from the hospital and left to the care of my family.
And now here we are, 2 months on. There are still so many things I'm struggling to come to terms with and I think it'll be a while before I do. But this morning has me reflecting on all the things I've overcome. I'm now pain free, completely. I've lost a stone and everyone tells me I've got my sparkle back. Not only am I back at work, my own business is now 3 months old (yup - started before the op!) and thriving. I've started with a personal trainer to regain the core strength I've lost and I'm improving my diet constantly. I've made new friends along the journey too.
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| With my cousin and sister at Christmas. |
But I think the best reward I've had from all of this is the relationship with my family. The support they've given me brings me to tears. There aren't words to describe what it means to me - my mum and Tom never left my side. Mum with her pep talks, her sympathetic ear and her endless patience in waiting rooms. Tom with his bear hug every time it all got too much, his constant support and his endless patience with my mood swings! Kassi with her sunny outlook on everything and her ability to make me laugh so hard I had to curl into a ball to protect my stitches. My grandparents with their endless generosity, helping me with anything I needed and just being there. And not forgetting my Dad who brought me crisps and Rachel who brought me magazines and distraction. I couldn't have done it without them. I still couldn't. They're my support, my inspiration and what keeps me going.
So there's my story. I don't want your sympathy, that wasn't the point. But now you know a little more about me and why I sometimes need a moment to compose myself or have to excuse myself from plans when I get tired. If you know me I hope it's given you insight into why I've been so absent from a social life lately and if you don't know me, I hope it's given you hope. Or at least been interesting to read for a while.
If you have any questions or stories of your own I'd love to hear them. You can leave a comment below or if it's personal you can email me: amirosemarshall@gmail.com
Thank you for reading.
Christmas Preparations!
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| Our tree looking pretty! |
Update on Life
I'm safely back at home and resting up so thought I'd share a little update with you. :)
The op went well and I came home Saturday evening after almost 24 hours of sleeping in the hospital. I even kicked out my visitors so they wouldn't have to watch me sleep! Since then I've been napping at least twice a day, snacking on plain foods and convincing Tom that I really do need him to set the Wii Fit up every morning so I can check my weight! (I'm more than a little curious how much weight that endo was taking up - results to come once the swelling disappears!)
I was also a lucky lady yesterday when my lovely sister and our friend Andy agreed to take Tom and I to the cinema to see Catching Fire (which I adored in case you're wondering, go watch it!). It was a bit of an expedition requiring a hot water bottle (got some funny looks for that), a pillow being seatbelted to my stomach and pre-warning of all the jumpy bits, but it was worth it and I rested all evening to make up for it.
I also had a visit from the amazing Rachel, who put up with my constant babbling with a smile. I've only seen family since the op so I probably dazed the poor woman and I wouldn't be surprised if her ears are still ringing!
Plans for the rest of the week include training Tom on the business elements of Social Media so he can help me with my new business, making a start on homemade Christmas presents before the Secret Santa deadline and having a lot of chicken soup which is my current food craving!
Hopefully I might find some time between all the napping and eating to write a blog post or two as well. ;)
Have a good week!
xx
Electronic Devices Prevent Proper Sleep
Things might be a little hit and miss for a few weeks while I'm recovering or I could be posting daily from boredom - we'll wait and see! But either way bear with me, I've got lots of exciting things to share with you over the coming months. :)
For now I wanted to share this article with you:
Light From Electronic Devices Prevents Proper Night's Sleep
New Fishies
I'd like you all to meet our new fishies! We have Charles & Petunia, Kenneth, Florence & Charlotte plus Francis the shrimp who doesn't appear in the photo. I apologise for the poor quality picture - its night time so we have the light off while they all sleep. I'll post a better one when I remember to take one in daytime!
We're going to be coming up with background blogs for each of them and sharing stories about them as their characters emerge. Charles is particularly funny to watch and he keeps dancing with Petunia. :)
Its so lovely having a tank in the house. Its relaxing watching them already so I can imagine they'll be bringing much happiness for years to come!
Delivery!
Much to Tom's amusement, I've been saving these parcels until they'd all arrived so I could open them all at once. They're the ingredients for some of the gifts I am making for Christmas and I cannot wait to get started!
I'm still gathering bits and pieces for the overall present, but now these things have arrived I can get on with step one. :-)
Are you making presents for people this Christmas? Let me know what you'll be doing in the comments!
How To: Turn a Jumper Into a Cat Bed
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| Sew up the neck hole |
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| Sew from armpit to armpit then stuff the arms & neck to create the sides of the bed |
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| Tuck the end of one arm into the other then stitch them together |
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| Pad the body of the jumper and trim the excess from the bottom, turn it over and stitch the body to the arms |
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| And you're done! Donate to a furry friend |
Recipe: Endo-Friendly Moroccan Chicken & Lemon Cous-Cous
Monday is meal plan & shopping day, so I usually spend the better part of the morning doing a quick inventory of the freezer and cupboards to see what we've got, then coming up with meals for the week. Mondays, Fridays and Saturdays tend to be my favourite days to cook something new as those are my days off and I can generally spend more time preparing an exciting meal.
| I forgot to take a picture of our meal last night so this picture is taken from the recipe! |
The Uprising Bakery and Cafe
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| Yummy wild berry tea! |
Exciting Delivery!
I've not been having the best week diet-wise and since having my last Zoladex I've been pretty tired and grumpy (much to Tom's dismay!) so up to now I didn't have anything to share with you guys. But today I got a very exciting delivery - the things I need to get started on Christmas presents!
Normally I'd keep it all top secret as family and friends read this, but I've been so excited by it all that I've told most of them anyway! In the picture you can see silicon moulds, lollipop sticks and cellophane wrap, which will eventually come together with some scrummy ingredients to make hot chocolate on a stick! I've got some other plans for gifts too, so there'll still be surprises for any relatives that spot this post.
I can't wait to get started with testing recipes and wrap ideas. :)
Will you be making any presents this year?
Recipe: Endo-Friendly Banana 'Ice-Cream'
Serves 1
Ingredients:
1 Banana
Fruit Syrup (optional)
Method:
1. Break the banana up into chunks
2. Freeze then part-thaw the banana
3. Blend the banana until it's smooth and creamy
4. Serve with fruit syrup
Very budget friendly, very tastebud friendly!
Recipe: Endo-Friendly Homemade KFC
It's healthier than KFC (who knows what else they put in it!), cheaper than KFC (the price of chicken plus a small amount of flour, spices and oil is a lot less than a takeaway) and better for the environment too - no wrappers to go in the bin. If I'd known about this recipe in my pre-diet days I'm not sure I'd ever have had KFC!
Serves 2
Ingredients:
2 large chicken breasts cut into pieces
Flour (I used rice flour but any gluten-free one should do)
Spices (I used paprika, cayenne pepper, asafoetida, oregano, thyme, chilli flakes, minced garlic)
Egg replacer
Olive Oil
Method:
1. Pre-heat the over to 22C
2. Mix the flour and the spices together in a bag (I used 4 tablespoons of flour and that was WAY too much - 2 should be more than enough)
3. Add about 1cm of oil to the bottom of a square glass dish
4. Dip the chicken into the egg replacer and place it in the bag, shaking it so that the chicken is fully coated (1-2 pieces at a time so that it doesn't all stick together)
5. Place the chicken in the dish, repeat until all the chicken is coated
6. Cook for 30 minutes, turn, then cook for a further 15 minutes
7. Remove from oil and place on a piece of kitchen roll to drain
8. Serve and enjoy!
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| Chicken ready to go in the oven! |
Recipe: Endo-Friendly Spicy Lentil and Chicken Soup
(Serves 2)
Ingredients:
100g Red Split Lentils
Olive Oil
1 Onion, chopped
1 Carrot, chopped
1 Garlic Clove
1 Large Chicken Breast
400ml Chicken Stock
270g Crushed Tomatoes
1tsp Cumin
1tsp Cayenne Pepper
Salt
Black Pepper
Method:
- Heat the oil in a large saucepan on a medium heat and add the onion, carrot and garlic - cook for 5 minutes.
- Add the chicken, cumin and cayenne and cook fur a further 5 minutes until the chicken starts to brown.
- Stir in the stock and water then simmer for 15 minutes or until the chicken is cooked through.
- Remove and set aside the chicken and add the lentils and tomatoes, leave to simmer for 15-20 minutes. While the soup is simmering, shred the chicken breast.
- Add the chicken back to the soup and simmer for a further 5-10 minutes.
- Season to taste and serve.
Busy, busy, busy!
Sorry for the lack of posting over the last week or so! I'm currently halfway between my 2 ops so I'm making the most of being able to do stuff with my family. :) When I recover from my next op it won't be far from Christmas and the weather will be gross so I'm enjoying everything while I can.
The weekend before last we went to Leicester to visit Tom's parents and were very spoiled. :) It was lovely seeing them sooner than planned and we've already arranged our next visit which makes a change!
Then the weekend just gone we went with my grandparents to their caravan so we were even more spoiled! The weather was crap but we still had a good time. My Nan took up to a wholefoods store in Sidmouth and I found my heaven. Nan treated me to things like endo-friendly pancakes, rice flour and even some raw chocolate covered raisins which are incredibly yummy.
That's it for weekend adventures now until after my op (that I know of...) but I've downloaded the Blogger app so that I can keep blogging on the move if things change. Can't believe I didn't think of it sooner to be honest!
I've slipped up on the diet through all this, despite doing my best to keep with it. I'll definitely be looking into easier ways to stick to the diet while on the move and of course I'll be sharing that with you!
So you can look forward to a few more recipes coming up - I especially want to share the Harissa chicken traybake that Tom's mum made for us which was lovely!
A note to friends and family...
Hospitals, Hormones and The Traumatic Incident of the Dog in the Evening.
Recipe: Endo Friendly Chicken Goulash
Serves 6 (I froze 4 portions for later meals)
Ingredients:
olive oil
1/2 an onion
3 cloves of garlic
1 red pepper
1kg chicken breast
1 1/2 tins of chopped tomatoes
1tbsp brown sugar
1tbsp paprika
3 handfuls of red lentils
other seasoning to taste (I used sage, mint, parsley & chilli flakes)
water/tomato puree can be used to thin/thicken it as you like
Method:
1. Heat oil in a pan and add the onion, saute until cooked through and add to the slow cooker.
2. Cook the pepper and garlic in the pan then add to the slow cooker.
3. Add all of the other ingredients (minus the 'other seasoning' and lentils) to the slow cooker and mix together.
4. Cook for 2.5-3 hours on High or 5-6 hours on Low.
5. Remove the chicken and shred it.
6. Add the chicken, lentils and other seasoning to the slow cooker and cook for 15 minutes on High or 30 minutes on Low.
7. Serve and enjoy!
I especially liked this recipe as it was something I could share with Tom - he cleared his bowl! Half the battle of the endo diet is feeling like you can't share meals with other people without feeling like they're giving up a good meal, so this was a real relief. :) It's also a budget-friendly meal, especially when done as a big batch. The chicken was the biggest expense at £6 but the rest cost no more than a few pence per ingredient, bringing the cost per portion to less than £1.50!
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